Devonne

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Parent's Name: Valerie Buskey
Child's Name: Devonne Buskey
Child's Date of Birth: 05/11/2003
Location: Rochester N.Y.
Diagnosis: Puv's, Chronic Renal Failure, Severe Bilateral Hydronephrosis, Grade 5 VUR, non-functioning bladder

Story:

My six year old son Devonne Buskey, was born May 12, 2003 after a diagnosis of urethral obstruction as made at twenty weeks. He was born with PUV's, and a high creatinine number that everyone believed would cause kidney failure before the age two. He went on to have Grade 5 Bilateral Vesicoureteral Reflux, Severe Hydronephrosis of both kidneys, and a non functioning bladder. To date, he has had over 12 surgeries and he currently is still dealing with Chronic kidney failure and all of the problems associated with it, Constant kidney infections that leave him hospitalized frequently for extended periods of time, and other non kidney related health problems.

He has a vesicostomy and a left sided nephrostomy due to drainage problems, and he has a foley catheter in place overnight, and is straight cathed during the day because of extremely high urine output ( polyuria ).

He will need a transplant going forward, and we are hoping to avoid dialysis and do a living donor (preferably myself or his father ).

He is followed by a Pediatric Urologist, Nephrologist, Gastroenterologist, Infectious Disease Specialists, Nutrionist, and soon a Genetecist. He is currently taking 16 different medications daily. He is the sweetest little boy, who loves life and all of the wonders that it has to offer. He is passionate about Spider-Man, Indiana jones, and of course Video Games. I live by the Motto that: " Life is not measured by how many breaths you take, but by the moments that take your breath away"