Online Support

PUVs

The email list that goes along with this website. Anyone who's life is touched by a child with PUVs or other congenital urologic/renal condition is welcome. Members must be approved.

PUV Angels

An email list for parents who have lost a child to PUVs or other urologic/renal condition. Members must be approved.

Dialysis Babies

An email list for parents of babies on dialysis. Members must be approved.

Kidtrans

Email list for parents of children who have had any type of transplant, or will need one in the future.

Kidney Corner

An email list for parents of children with any type of kidney problem.

Prune Belly Support Network

A site with information and support for families dealing with Prune Belly Syndrome

Prune Belly Syndrome Family

The Prune Belly Syndrome Family is dedicated to helping children and adults who have Prune Belly Syndrome and assisting the family members, professionals and support services that serve them. The PBSF is an all volunteer group committed to the identification, treatment and care of all with PBS through programs of education, support, advocacy, research and service. We will strive to ensure that no one with PBS will ever feel alone again.

IA Parents Support Group

This group exists to offer information, support, and a host of resources, including monthly online chats with medical specialists, to parents of children born with Imperforate Anus and other types of AnoRectal Malformations.

PUVs.org Facebook Group

The Facebook version of the PUVs.org email list

Kidtrans Facebook Group

The Facebook version of the Kidtrans.org email list. For parents of children who have a transplant or who will need one.